Saving Miel

For the past year and a half, my life has been turned upside down, my heart is shattered into pieces

Every time I look at my baby Miel, I am drowning in tears and agony.

How can I tell her that we might not be able to save her?

When Miel was born, I thought my heart would burst with happiness. I didn’t know then that it would soon be filled with endless pain that cannot be described in words.

Miel was diagnosed with Progeria – a rare syndrome causing accelerated aging. She is the first and only baby in Israel with this disease.

At just 18 months old, she suffers from symptoms and health problems of an old person – muscle issues, vascular and joint problems, increased risk of heart attack or stroke, growth problems, calcium deficiency, and more.

She is ventilated through a tube in her throat and fed solely through a feeding tube.

Doctors say that in her current condition, she will live between 8-12 years!

Five kilos of light, love and innocence, fighting a body that betrays her.

I hardly manage to get any sleep at night, I stay close to Miel’s bed to make sure she’s breathing and that her feeding tube is in place.

Our days are filled with treatments, pain, strong medications, frustration, and endless tears.

Miel vomits everything she eats, and each time my heart breaks anew. I see my other children, aged 7.5 and 3.5, looking at her with concern, and I feel full of guilt for not being able to give them a normal life.

Over the past 7 months, the hospital has become our second home. We stopped working, sold our house, sold our business, asked for help from everyone we know, we did everything we could, to give Miel a chance. But it’s not enough. In Israel, there is no suitable treatment, no hope. I felt that except for me, everyone had already given up on my child.

And then a miracle happened, we found a glimmer of hope – A hospital in Chicago is willing to accept Miel and provide her with treatment that could save her life. The comprehensive treatment includes stem cell transplantation from her sibling, therapy for her feeding problem, and a groundbreaking genetic treatment to correct the defective gene causing all the trouble – this is our only chance to save her!

The costs are staggering. We must raise 2.5 million shekels within a week – an astronomical sum for a family that has already sacrificed everything.

I turn to you, embarrassed, desperate, please help us save Miel. Help us give her the chance every child deserves – the chance to live, to grow, to dream.

This plea isn’t mine alone – it’s Miel’s silent cry, her siblings’ unspoken wish, the collective hope of all who believe that every life matters. Please, I beg you, help us fulfill the simplest dream – to see Miel grow up.

I’m devastated by the thought that I might lose my baby because of money!

Please don’t stay indifferent. She deserves to live.

Charitable donations processed for this campaign are received and distributed through American Commitee for Lehoshit Yad, a fully registered Tax-Exempt charity 501(c)3,

EIN #: 47-2683708

American Commitee for Lehoshit Yad

Tax ID 47-2683708

Address: 10101 Fondren Rd Suite 400 ,Houston TX 77096

Mail: moshe@l-yad.org

Tel:6177847196